Are several families having children with POBINDS syndrome caused by different types of mutations in the CSNK2B gene and causing different kinds of neurological disorders including epilepsy, speech impairment, motor skills delay, and many other things. We were alone at the start of this as this syndrome is very rare causing many of us to be the only one diagnosed with this syndrome in their countries. But we found each other and things started to get easier by sharing information, research, experience, doctors' opinions, and many other things.
2017
2018
2019
2020
Discovery of the first cases of CSNK2B
Facebook page done by one parent brought us together. Then we made a private group on Facebook to share information.
We met people from CSNK2A orgnazation.
We made this website.
52
Reported Cases
26 Documented cases in USA and Europe
12 Documented cases in China
For detailed specification of every single child please refer to the Education section
